The Danish Cancer Register

Summary

Strengths: This registry provides virtually complete coverage due to thorough data validation procedures and cross-checks with other registers. Weaknesses: No official documentation is available in English at www.ssi.dk.

Type of data

Data Source
Registry

Type of Study
Other: Register

Data gathering method
Registries

Access to data

Conditions of access

Type of available data (e.g. anonymised microdata, aggregated tables, etc.)
Anonymised microdata

Formats available
SAS

Coverage

Coverage Years of collection, reference years, and sample sizes
The register collects data annually and it covers all Danish citizens who have been diagnosed with cancer.

First year of collection
1987 - before that it was not compulsory to report

Stratification if applicable
Information on the entire Danish population.

Base used for sampling

Geographical coverage and breakdowns
N.A.

Age range
N.A.

Statistical representativeness
Other, please specify

Coverage of main and cross-cutting topics
Covers health

Linkage

Standardisation
Diagnoses

Possibility of linkage among databases
Data from the Register of Medicinal Product Statistics can be linked to other register data available at Statistics Denmark through an encrypted identification key.

Data quality

Entry errors if applicable
N.A.

Breaks
After automatic cross-checks against other registers, manual assessments of 10-20 percent of the cancer reports are performed. Sometimes it is necessary to contact the reporting entity to verify the illness. Including information from the pathology register contributes to the virtual completeness of the Cancer Register.

Consistency of terminology or coding used during collection
N.A.

Governance

Contact information
Statens Serum Institut
The Danish State Serum Institute, SSI
Artillerivej 5
DK-2300 Copehangen S Austria Phone: (+45)32683268
Email: serum(at)ssi.dk
Url: http://www.ssi.dk/Sundhedsdataogit/Registre/Cancerregisteret.aspx

Timeliness, transparency
N.A.