The Danish Diabetes Registry (NDR)

Summary

Strength: This registry provides virtually complete coverage of diabetics, which enables research into other illnesses and the social gradient related to diabetes. Weaknesses: It does have a limited number of variables, e.g. no variable indicating type of diabetes, and there are no official documentation available in English at www.ssi.dk

Type of data

Data Source
Registry

Type of Study
Other: Registry

Data gathering method
Registries

Access to data

Conditions of access

Type of available data (e.g. anonymised microdata, aggregated tables, etc.)
Anonymised microdata

Formats available
SAS

Coverage

Coverage Years of collection, reference years, and sample sizes
The registry collects data annually and it covers all Danish citizens who have been diagnosed with diabetes.

First year of collection
1997

Stratification if applicable
Information on the entire Danish population.

Base used for sampling

Geographical coverage and breakdowns
N.A.

Age range
N.A.

Statistical representativeness
Other, please specify

Coverage of main and cross-cutting topics
Covers health

Linkage

Standardisation
Diagnoses

Possibility of linkage among databases
Data from the Register of Medicinal Product Statistics can be linked to other register data available at Statistics Denmark through an encrypted identification key.

Data quality

Entry errors if applicable
N.A.

Breaks
N.A.

Consistency of terminology or coding used during collection
N.A.

Governance

Contact information
Statens Serum Institut
The Danish State Serum Institute, SSI
Artillerivej 5
DK-2300 Copehangen S Denmark Phone: (+45)32683268
Email: serum(at)ssi.dk
Url: http://www.ssi.dk/Sundhedsdataogit/Registre/Diabetesregisteret.aspx

Timeliness, transparency
N.A.